Max and the hospital crew in action.

ME ME ME and me again

Daddy and ME

ME posing with with all the cute nurses

Ehhh that's not funny,he is not a nurse,what only I'm not a rabbit hahaha

Max was fine again, a really action man, I went there for about two hours only

sorry was busy today, that's why I was late.

Mom want's to send baby sis Mishal to Thailand.

Hard but no choice, mom has decided to send Baby sis Mishal to her relatives in Thailand on 1.march, she can't take care of both while staying in hospital, at least for the next few weeks or for as long as Max have chemo, I hear ed they want to start chemo by next week again, today he received two pack's of red blood, he got poked in his hand this time, mom say he is very active and don't want to stay in bed any longer, I can't visit him now because I got cough cough cough, better wait a few days. Today she got some donations, about S$100 from people who don't even know them, they so this blog and felt they wanted to help, NICE people, the money helps mom for buying pampers, powder, baby bath and milk, happy for mom, glad my blog helped somehow, weeeeee :)

A little fever here a little pain there but not as bad as all the weeks before.

A walk 2 remember,Nasir and Max :) cute couple

Eating with much better appetite nowadays this lil fellow Max, having a lil fever but still very active, Nasir and Liza visited him at KK hospital this evening,

Mom and Max having a great time.

Today I went to visit Max,
was fun seeing him so active, mom was so happy,
he just kicked away his needle from his leg just after receiving blood transfusion,
because he was angry when the nurse took his temperature.

Mom and Max are having fun outside the room,

Max pushing his trolley at the hospital the corridor,

everyone who sees him call's his name, haha, like a star

Max acting serious while looking what mom is doing,

mom happy because Max is so playful today,

he is still a bit weak on his short legs and want to be carried,

Sweet faces both of them

mom acting cute, no la, she is cute.
-------------------------------------------------------------
25 feb 2008

Nadya and Saiful

Today, at around 5pm, Nadya and Saiful came to the hospital,

Saiful had some quality time playing with Max and Nadya was enjoying herself too,

mom said Max was very happy.

Time spent with lil 3 month old sister Mishal Mathilda Morris!

Today Tuk was very busy, taking care of her two kids alone in the hospital, I hear ed them both screaming when I called her, stress haha, however still got to kiss and hug Mishal, she can't see her every day, mostly only Sunday's, in the evening Max got fever again but blood tests are ok, anyway he is in a better mood nowadays, more laughter and more active, that's great, hope he don't have to suffer, mom is getting crazy at the hospital, she wants to get out, staying there for more than 3 month already, that's tough, I would get crazy too, lucky she got a visit from sis in low and could relax her mind a bit, sis in low promised to help her to pay for ticket to send baby Mishal to Thailand.

The prayers are working good for Max,thank you people!

Another fine day for Max, he was doing great today and enjoyed playing with Nadya and Liza, he still needed some blood because the blood was low and he was a bit pale, but other than that was ok, it must be the prayers, thanks a lot, Nadya took some videos and snapped some pics, I will post them as soon as I get them.

Amazing people from the UK.

Help might be coming soon from the UK, United Kingdom, all because of one nice Lady named "Lisa", who had watched the video of Max that I had posted there, she has 3 children, 2 girl and one boy, the boy's name is"Jason"and he is 2 years old, just like Max he has LCH, I think he is doing fine with his treatment, Lisa organised a donation day at the local church and the doctors said they would be able to come in 4-6 weeks and she'll hopefully get loads of people to come. They said they wouldn't be able to contact us over here, Max's doctors would have to check the donor's register over there to see if a match was found. Her friend has also put an appeal on facebook, using 'cure for Histiocytosis' group.She posted a link of Max blog on her page, I've posted a link of both friend's on the left side of this blog, go check it out, there is a lot of hope for Max with people like that, thank you so much, what more can we ask for, that is so amazing, also a big thanks to all his friend's in Singapore, who are there for him.Today Max had fever, means no visitor aloud, pity Nadya who was so eager to meet him today but couldn't, hey Nadya, cheer up, better luck tomorrow:)

Good day and bad day,we love him every day.

Kung and Max (edited by Vanessa)

Visited him today, well to me, he looked happy, he was playing and smiling all the way, he really is a strong boy, so different from the last two day's, I was truly relieved, he has his ups and downs and yesterday was definitely an up day :) , he looked good, the rashes were as good as gone and his hair is growing back, he had pinkish cheek's and his face swelling came down a lot but his tummy was still the same, really big, that's one of the reason why the doctor's are worried to continue with the medication, they want him to be stable first,mom forget to check her passport and found out that her long term pass was expired since 28 day's,they rushed to the immigration and have to pay S$500 for the overstay,the hospital gave them a letter for the immigration, to confirm mom's stay at the hospital, that's what I call BAD LUCK!!=( Dad wrote a letter too, asking them to give chance because of the situation they're in, hope they don't have to pay, have to wait til tomorrow what they have to say, that was why I went to the hospital today, to take care of Max while mom and dad make the pass, my God, he kept asking one and half our for his mom, I had to carry him all the time because he is unable to walk, I'm sure going to have back pain tomorrow.LOL, never mind, at least I could help a bit.

OPS, you find spelling error's, so sorry about it, LOL, it's a diary not an English test.

The nightmare have started all over again!

Everyone has dream's
(edited by Vanessa)

The torture continues, poor little fellow, got poked with needles, blood is low again,got white blood transfusion yesterday, temperature up , Doctors don't give much hope for the treatment to work, little max did not respond as good a he should to the chemo, the blood test shows no bacteria but his fever and low blood proves, that the disease is still active, Vanessa and me, we were very upset about the sad news and we broke out in tears after receiving a call from Max's mom this noon, telling us while crying "I don't want to loose my boy" all her dreams for Max, leaving the hospital , where she stays with him since October last year, were chattered and the fear, of the possibility that she could loose her boy was devastating, that really made me so sad and made me realise how helpless we are, I went the hospital and I told both, mom and dad, never to give up hope but to be prepared for the worst, we don't want to think about it but we cannot ignore the fact that this disease can be deadly, It's all up to "GOD" there is always hope as long as we believe.

Do anyone have a video camera? Mine is spoiled and my camera's memory card is damaged too.
Just to do some videos of Max, thanks for your help.

MaxMaxMax, cool down boy!

He had fever today,hope it goes away as quick as it came.
Here some videos from Max on You Tube.
http://www.youtube.com/watch?v=aNyOCQRn0C4&feature=user

And another one.
http://www.youtube.com/watch?v=RsdQpxLxGoA&feature=user

No News Is Good News! I Hope!

Yes, so far Max is doing well, just spoke to his Mom, tomorrow they'll make a blood test, to see if there are any bacteria left, if the blood test is good then he can go out of the hospital, I can't tell if that is good or bad news because they are staying with friends, the house will be packed with at least 9-10persons in a 4room flat, more easy for Max to catch bacteria, some more the friends they stay with have a pet(dog), hopefully everything works out for the best, still no news about any help, hmm! The good thing is that mom will be reunited with baby Mishal, if Max let her, haha, he is just soooo jealous, poor mom!

Pictures sent by Nadya, thank's:)

Here with Saiful, having fun by doing facial expressions, cute

Max is doing great compared to the last few week's.

Max got some visitors today,he was so happy,

First time playing again, after being weak for so long,

nice seeing him like that, the only problem is his blood test result,

it clearly shows that he isn't fine at all, low red blood, low white blood.

Conversation between mom and Max:

Mom :"Max!! You must eat many many,so that you can be my strong boy."

Max:"Huh?"

Mom :"You must eat."

Max:"Huh?"

Mom:"Eat! Ok?"

Max:"Huh?"

How to explain something like that if the child is too young to understand? Huh?

But he did eat well yesterday and it was a joy to watch, so maybe he did understand but just pretended not to,LOL.

Family reunion at KK hospital

Max did well today, no fever at all, chemotherapy has ended for now, he still gets blood transfusions, Mathew(dad)picked up his lil baby girl(Mishal)and brought her to meet mom(Tuk)and brother(Max)at KK hospital, mom and Max where so happy, but the happy reunion didn't last for very long, hmmmmmmmmm, dad got unexpected call to work sooner then he toughs, he had to bring Mishal back to their friends home, at least they had a happy moment together and mom gave Mishal a nice bath and enjoyed hugging and kissing her.Sho shweet!



Max's hair is growing, Ahaha! It's mom's hair! When mom bent over Max with her hair and I snapped the picture.

IV insertion had to be replaced. OUCH!!! =(

Ok, Max's IV insertion, that they placed in the long line/neck vein,had to be replaced, now he got two IV insertions, one on the foot, for chemotherapy (how to walk?) and one in the arm/hand for blood transfusion and other medication (how to hug me now?) poor thing but it had to be done. I think the chemo should be over by today or tomorrow but I don't think that he will be going home soon he got fever. (mostly around 40plus) Let's wait and see,anyway they can't do much after the chemo, accept a bone marrow transplant, but they have to find a suitor (doner) first and lot's of money too. I heared that one month in the isolation room will cost around $40 000 but that does not include the bone marrow. That's crazy. Urrgh!!!

Max's lil sister is taken care of by friends,what a cutie,isn't she,like want to pinch haha

03.02.2008 nearly 3 month old
picture taken on Max B'day party
Pete and Oxy

24.12.2008 43 days old
Christmas eve and Dian's B'day outing
picture taken at Bugis

09.12.2007 1month old

Liza and Mishal

11.11.07 2 days old .... about 1 month old