Friday, June 27, 2008
Chemo started just to be stopped again ...
Today Max got his first chemo treatment and Tuk was very excited that finaly the results were good enough to start the therapy, the good news however didn't last for very long, she just called me up at 6pm, telling me that Max liver blood count came out not good, his count is about 2004 which is very high, and they have to stop the chemo therapy, the doctor asked Tuk if she was giving any kind of traditional herbs or medication to Max and Tuk was like wth ... are the trying to put the blame for his high blood count on me, she never give him any traditional herbs or medication, the funny thing is that Max seams to be ok, I talk to him every day on the phone and Tuk said it too that he seams ok, of cause Tuk is very worried and me too
Thursday, June 26, 2008
Max is back to the KK hospital
Since 23 of June, Max was back at KK hospital, awaiting his Chemo Therapy, he will receive it by tomorrow if everything is clear, hope he get it fast, no need to waste precious time, I 'm so sad because he keeps asking for me but I'm unable to visit him at this moment,just had my spine operation done and very weak on my legs still, as soon as I'm able to stand longer I will sure visit him"did you hear me Max,I will sure come and visit you soon" stay strong my boy, yesterday when Tuk called my on my phone, I hear ed him laughing at the background, so cute,I asked Tuk what he was doing and she told me that he was jumping on the bed, pretending to be a monkey and laughing all by himself ...
A visitor at the hospital
Tuk and her lovely big smile,really pretty and cute as allways ...
Max loves the PSP, he was very proud to let me see how he pressed the buttons ...It was the first time that Max was the visitor and Leila(me)the patient in the hospital, he looked like he wanted to ask me"what are you doing in the bed", he looked so cute, he came very near to me looked at me with his big eyes and gave me the super sweet smile, he repeated it a few times, that was so cute, he kept on saying "ti pain"and pointed to my back ... 
how beautiful they brought me this nice basket with all those nice smelling roses, and they brought Lot's of food for me,thank you so much to Max,Tuk and Matthew, see you soon ...
Tuesday, June 17, 2008
Max is out of KK
Yes you read it right, Max is out of KK since Monday night, well just for a while, until he is totaly free from any cough, flu or fever, he has to be very fit for the next chemo because the chemo this time will be even stronger than all the others that he received before, unlucky for Tuk is that she herself is not feeling well and she got backpain, just like me hmmm, thats funny, poor thing, I gave her some of my painkiller,hope they help her, as for me I have to be operated on my spine this saturday, got slip disc and it's serious, maybe you wondered because I seldom updated, yes that's one of the reasons I didn't, I was and still am in great pain, so sorry to all of you for not updating and it might be a nother two weeks before I will update again ...
Monday, June 9, 2008
Sunday, June 8, 2008
Out of danger
Doctor said Max is out of danger, his condition is stable again, it's not worsening, that's once again great news, as soon as he is free from any virus and infections he will get chemo treatment, if the test is negative on Monday then Max might leave the hospital for about 3 days, don't know why, guess the doctor knows best what they are doing ...
Friday, June 6, 2008
Respiratory Synctial
Respiratory syncytial virus (RSV) is a major cause of respiratory illness in young children. RSV causes infection of the lungs and breathing passages. In adults, it may only produce symptoms of a common cold, such as a stuffy or runny nose, sore throat, mild headache, cough, fever, and a general feeling of being ill. But RSV infections can lead to other more serious illnesses in coughs or sneezes. The virus can also live on surfaces such as counter tops or doorknobs, and on premature babies and kids with diseases that affect the lungs, heart, or immune system.
RSV is highly contagious, and can be spread through droplets containing the virus when a person hands and clothing. RSV can be easily spread when a person touches an object or surface contaminated with the virus. The infection can spread rapidly through schools and child-care centers. Infants often get it when older kids carry the virus home from school and pass it to them. Almost all kids are infected with RSV at least once by the time they are 2 years old.
RSV infections often occur in epidemics that last from late fall through early spring. Respiratory illness caused by RSV — such as bronchiolitis or pneumonia — usually lasts about a week, but some cases may last several weeks. Doctors typically diagnose RSV by taking a medical history and doing a physical exam. Generally, in healthy kids, it's not necessary to distinguish RSV from a common cold. But in cases where a child has other health conditions, a doctor might want to make a specific diagnosis. RSV is typically identified in nasal secretions, which can be collected either with a cotton swab or by suction through a bulb syringe.
Preventing RSV
Because RSV can be easily spread by touching people or surfaces that are infected, frequent hand washing can go a long way toward preventing the virus from spreading around a household. It's best to wash your hands after having any contact with someone who has any cold symptoms. And keep your school-age child with a cold away from younger siblings — particularly infants — until the symptoms pass.
To prevent serious RSV-related respiratory disease, at-risk kids can be given a monthly injection of a medication consisting of RSV antibodies during peak RSV season (roughly November to April). Because its protection is short-lived, it has to be given in subsequent years until the child is no longer at high risk for severe RSV infection. Ask the doctor if your child is considered high risk.
Treating RSV
Fortunately, most cases of RSV are mild and require no specific treatment from doctors. Antibiotics aren't used because RSV is a virus and antibiotics are only effective against bacteria. Medication may sometimes be given to help open airways.
In an infant, however, an RSV infection can be more serious and may require hospitalization so that the baby can be watched closely, receive fluids, and, if necessary, be treated for breathing problems.
At home, make a child with an RSV infection as comfortable as possible, allow time for recovery, and provide plenty of fluids. The last part can be tricky, however, because babies may not feel like drinking. In that case, offer fluids in small amounts at more frequent intervals than usual.
To help your child breathe easier, use a cool-mist vaporizer during the winter months to keep the air moist — winter air can dry out airways and make the mucus stickier. Avoid hot-water and steam humidifiers, which can be hazardous and can cause scalding. If you use a cool-mist humidifier, clean it daily with household bleach to discourage mold.
If your child is uncomfortable and too young to blow his or her own nose, use a nasal aspirator (or bulb syringe) to remove sticky nasal fluids.
Treat fever using a non aspirin fever medicine like acetaminophen. Aspirin should NOT be used in children with viral illnesses since its use in such cases has been associated with Reye syndrome, a life-threatening illness.
RSV is highly contagious, and can be spread through droplets containing the virus when a person hands and clothing. RSV can be easily spread when a person touches an object or surface contaminated with the virus. The infection can spread rapidly through schools and child-care centers. Infants often get it when older kids carry the virus home from school and pass it to them. Almost all kids are infected with RSV at least once by the time they are 2 years old.
RSV infections often occur in epidemics that last from late fall through early spring. Respiratory illness caused by RSV — such as bronchiolitis or pneumonia — usually lasts about a week, but some cases may last several weeks. Doctors typically diagnose RSV by taking a medical history and doing a physical exam. Generally, in healthy kids, it's not necessary to distinguish RSV from a common cold. But in cases where a child has other health conditions, a doctor might want to make a specific diagnosis. RSV is typically identified in nasal secretions, which can be collected either with a cotton swab or by suction through a bulb syringe.
Preventing RSV
Because RSV can be easily spread by touching people or surfaces that are infected, frequent hand washing can go a long way toward preventing the virus from spreading around a household. It's best to wash your hands after having any contact with someone who has any cold symptoms. And keep your school-age child with a cold away from younger siblings — particularly infants — until the symptoms pass.
To prevent serious RSV-related respiratory disease, at-risk kids can be given a monthly injection of a medication consisting of RSV antibodies during peak RSV season (roughly November to April). Because its protection is short-lived, it has to be given in subsequent years until the child is no longer at high risk for severe RSV infection. Ask the doctor if your child is considered high risk.
Treating RSV
Fortunately, most cases of RSV are mild and require no specific treatment from doctors. Antibiotics aren't used because RSV is a virus and antibiotics are only effective against bacteria. Medication may sometimes be given to help open airways.
In an infant, however, an RSV infection can be more serious and may require hospitalization so that the baby can be watched closely, receive fluids, and, if necessary, be treated for breathing problems.
At home, make a child with an RSV infection as comfortable as possible, allow time for recovery, and provide plenty of fluids. The last part can be tricky, however, because babies may not feel like drinking. In that case, offer fluids in small amounts at more frequent intervals than usual.
To help your child breathe easier, use a cool-mist vaporizer during the winter months to keep the air moist — winter air can dry out airways and make the mucus stickier. Avoid hot-water and steam humidifiers, which can be hazardous and can cause scalding. If you use a cool-mist humidifier, clean it daily with household bleach to discourage mold.
If your child is uncomfortable and too young to blow his or her own nose, use a nasal aspirator (or bulb syringe) to remove sticky nasal fluids.
Treat fever using a non aspirin fever medicine like acetaminophen. Aspirin should NOT be used in children with viral illnesses since its use in such cases has been associated with Reye syndrome, a life-threatening illness.
Wednesday, June 4, 2008
What a bad news ...
Today I went to KK hospital, couldn't enter the room and Max is in isolation, he cought a Virus, wonder where he got that from, it may be spreadable and might even be dangerous to some people, don't ask me what virus, I do not know, I have no clue whats going on, the doctor seams very unfriendly and said that the mother(Tuk)is not supposed to exit the room, Tuk is slowly getting mad, oh dear, poor Max, he cried when I could not enter his room,kept on calling ti come ti come, ti = auntie, his bone marrow biopsy was posetive, that's not good, means he still got LCH, so sad, they(the doctors) urge them(Max's parents) to make bone marrow transplant ... 
Tuesday, June 3, 2008
He misses the freedom
Usually Max should have gotten his chemo treatment yesterday but it had to be postponed, he vomited and had fever, guess the allergic reaction to the hospital is worsening, if he gets over it, then the chemo treatment will start on this Wednesday(tomorrow), come on Max, do it faster so you can walk on the road again soon, Well!! Tuk informed me so late about that, guess she was busy, ha ha, I could have visit him at KK yesterday and would have gotten my hugs and kisses, I was so free, like a bird, what to do, don't know if I got the time today, anyway instead I went out shopping with Liza, all kind of nonsense things and she got the shirt she wanted and was happy once again LOL ...
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