Max and his battle

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Saturday, April 26, 2008

Yes!! or No!! to bone marrow transplant

Vanessa and Yazier went to see Max at KK today, first Tuk and Max were sleeping when Vanessa and Yazier arrived there, it was more one of Max's bad days today, he wasn't in the mood, who knows what he had to go trough, I heared his fever is getting higher again, we all can't imagine and can't expect him always to be the happy Max even when he's in pain, Vanessa and Yazier tried to cheer him up from where they stand, outside the door, not easy from that distance, though he was a bit amused by Yazier's cowboy hat, HaHa, well it worked for me too, very COOL!! poor Max, have to stay locked up for so long, while there are cowboys peeping into his room, lol, couldn't help myself, joking joking, he looks good with his cowboy hat, must be terrible for a 2 year old, who loves to run after the robots, those who deliver the food and the documents at KK, now being tied up to this small space, and seeing everyone else walking around, his only joy nowadays is collecting coins from the nurses for his saving box, but how long does this kind of fun last.




Should THEY GO TROUGH BONE MARROW TRANSPLANT? The doctors are urging Tuk to let Max have a bone marrow transplant, even Max seams better now, there is still the risk that the LCH might come back, Tuk is scared to death, not knowing what the bone marrow transplant will do to Max, while transplantation is a life-saving therapy, not all recipients survive, sometimes a patients body cannot withstand the pre-transplant chemotherapy and radiation, sometimes health complications occur after the transplant but for many recipients, a transplant is successful and their best or only option and a hope for a second chance of life, it's only left option, other than that the doctors can't do anymore, the problem is that nowadays people don't have time to explain with patience, Tuk understands English but have problems when it comes to medical language, who dosn't, we are not doctors.

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Living the moment!: To do or not to do

WHAT IS BONE MARROW?
Bone marrow is a spongy tissue found inside bones. The bone marrow in the breast bone, skull, hips, ribs and spine contains stem cells that produce the body's blood cells. These blood cells include white blood cells (leukocytes), which fight infection; red blood cells (erythrocytes), which carry oxygen to and remove waste products from organs and tissues; and platelets, which enable the blood to dot.

WHY TRANSPLANT?
in patients with leukemia, aplastic anemia, and some immune deficiency diseases, the stem cells in the bone marrow malfunction, producing an excessive number of defective or immature blood cells (in the case of leukemia) or low blood cell counts (in the case of aplastic anemia). The immature or defective blood cells interfere with the production of normal blood cells, accumulate in the bloodstream and may invade other tissues.

WHAT A PATIENT FEELS DURING THE TRANSPLANT
a bone marrow transplant is a physically, emotionally, and psychologically taxing procedure for both the patient and family, the bone marrow transplant is a debilitating experience, imagine the symptoms of a severe case of the flu - nausea, vomiting, fever, diarrhea, extreme weakness, now imagine what it's like to cope with the symptoms not just for several days, but for several weeks, complications can develop after a bone marrow transplant such as infection, bleeding, graft-versus-host disease, or liver disease, which can create additional discomfort, the pain, however is usually controllable by medication, in addition, mouth sores can develop that make eating and swallowing uncomfortable, temporary mental confusion sometimes occurs and can be quite frightening for the patient who may not realize it's only temporary.

PREPARING FOR THE TRANSPLANT
a successful transplant requires the patient be healthy enough to undergo the rigors of the transplant procedure, age, general physical condition, the patients diagnosis and the stage of the disease are all considered by the physician when determining whether a person should undergo a transplant, prior to a bone marrow transplant, a battery of tests is carried out to ensure the patient is physically capable of undergoing a transplant, tests of the patients heart, lung, kidney and other vital organ functions are also used to develop a patient "baseline"

against which post-transplant tests can be compared to determine if any body functions have been impaired, the pre-transplant tests are usually done on an outpatient basis, a successful bone marrow transplant requires an expert medical team - doctors, nurses, and other support staff - who are experienced in bone marrow transplants, can promptly recognize problems and emerging side effects, and know how to react swiftly and properly if problems do arise, a good bone marrow transplant program will also recognize the importance of providing patients and their families with emotional and psychological support before, during and after the transplant, and will make personal and other support systems readily available to families for this purpose.